Agency for Healthcare Research and Quality (AHRQ)

301-427-1364
AHRQ works to improve the quality, safety, efficiency, and effectiveness of health care for all Americans. Information from AHRQ's research helps people make more informed decisions and improve the quality of health care services.

Association of Organ Procurement Organizations (AOPO)

703-556-4242
AOPO represents and serves OPOs through advocacy, support, and development of activities that will maximize the availability of organs and tissues and enhance the quality, effectiveness, and integrity of the donation process.

Caring Voice Coalition

1-888-267-1440
Caring Voice Coalition is dedicated to building relationships with charitable organizations founded to help individuals and families affected by serious chronic disorders and diseases. Caring Voice will work together with these organizations to offer outreach and support services that directly benefit the patient community.

Friends of Karen

Friends of Karen’s mission is to provide emotional, financial, and advocacy support for children with life-threatening illnesses and their families, in order to help keep them stable, functioning, and able to cope.

Health Advocate Inc.

610-825-1222
Health Advocate, Inc., the nation’s leading healthcare advocacy and assistance company, serves millions of Americans nationwide through its more than 5,000 client relationships. It helps members navigate the healthcare system through a full spectrum of time- and money-saving solutions.

HealthCareCoach.com

HealthCareCoach.com is a project of the National Health Law Program (NHeLP), a non-profit legal organization. For more than 30 years, NHeLP has worked to improve access to quality health care, educate consumers about their legal rights and provide information and policy advocacy.

Kenneth B. Schwartz Center

617-724-4746
The organization supports and advances compassionate health care in which caregivers, patients and their families relate to one another in a way that provides hope to the patient, support to caregivers and sustenance to the healing process.

Medical Billing Advocates of America

304-645-6389
The organization is committed to educating and arming the public with the knowledge they need to fight this battle and win the war against escalating healthcare costs. Its mission is to ensure that no one pays a dime more than they truly owe for medical care.

Medicare Rights Center

1-800-333-4114
The Medicare Rights Center works to ensure access to affordable health care for older adults and people with disabilities through counseling, educational programs and public policy initiatives.

National Underinsured Resource Directory

The National Underinsured Resource Directory is intended to help underinsured individuals and families locate valuable resources and seek alternative coverage options or methods for better reimbursement.

Patient Advocate Foundation

1-800-532-5274
Patient Advocate Foundation is a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases.

Patient Services Incorporated (PSI)

1-800-366-7741
PSI is a health insurance premium and co-payment organization for people who live with certain chronic illnesses and conditions.

Pennsylvania Health Law Project (PA)

1-800-274-3258
PHLP is a nationally recognized expert and consultant on access to health care for low-income consumers, the elderly, and persons with disabilities. PHLP provides free legal services to lower-income consumers, seniors, and persons with disabilities who are having trouble accessing publicly funded healthcare coverage or services.

Tri-State Advocacy Project

1-877-774-6380 
An advocacy organization for spinal cord and burn injured survivors and amputees.

Unite 2 Fight Paralysis

The non-profit organization is dedicated to the realization of curative therapies in the immediate future, and to achieve this goal will present a united & consistent message to government, industry, science, the media and the general public.

Caregiver Resource Center

203-861-9833
This organization is a division of Employee Assistance Professionals, Inc. Our mission is to assist elders and their loved ones in understanding the aging process, facilitating open communication; and providing information, support and guidance through the caregiving process.

Caregiver Resource Network

This organization provides family and professional caregivers with needed information and resources.

Connecting with Seniors

732-714-9704
This organization offers support to those caregivers who feel alone and overwhelmed, helping them find resources to better cope with the daily care of loved ones.

Empowering Caregivers

212-807-1204
This organization provides a safe, nurturing place for all family caregivers as well as professionals. Resources include a monthly newsletter, journal excercises for the community, and providing scheduled chats and forums/message boards.

Family Caregiver Alliance

1-800-445-8106

FindaCaregiver.com

FindaCaregiver.com strives to bring both caregivers and care-receivers helpful information about everything from family caregiver tips to caregiver job hiring.

Kenneth B. Schwartz Center

617-724-4746
The organization supports and advances compassionate health care in which caregivers, patients and their families relate to one another in a way that provides hope to the patient, support to caregivers and sustenance to the healing process.

National Alliance for Caregiving

Established in 1996, the organization is a non-profit coalition of national organizations focusing on issues of family caregiving. Alliance members include grassroots organizations, professional associations, service organizations, disease-specific organizations, a government agency, and corporations.

National Family Caregivers Association

1-800-896-3650

Rosalynn Carter Institute for Caregiving

229-928-1234
RCI works to establish local, state and national partnerships committed to building more effective long-term systems and providing greater recognition and support for caregivers, both family and professionals.

Well Spouse Association

The Well SpouseTM Association, a nonprofit 501(c)(3) membership organization, advocates for and addresses the needs of individuals caring for a chronically ill and/or disabled spouse/partner. We offer peer to peer support and educate health care professionals and the general public about the special challenges and unique issues "well" spouses face every day.

Able Trust (FL)

1-888-838-2253
The organization works to be the leader in providing Floridians with disabilities fair employment opportunities through fundraising, grant programs, public awareness and education.

Access Anything

970-846-9859
The mission of Access Anything is to improve the quality of life for millions of people living with disabilities in the United States and around the world by encouraging them to enjoy life to its fullest through the sense of freedom provided by travel, adventure, and a "never give up" attitude. It is our vision to spread awareness concerning the need for better accessibility by writing guidebooks and articles for people with disabilities, consulting with travelers and industry professionals on improvements in this industry, and establishing a common ground where people and information can come together and work to expand the rapidly growing adaptive travel industry through motivational speaking and general educating.

Acquired Brain Injury Network of Pennsylvania, Inc. (PA)

1-800-516-8052
The organization is dedicated to increasing public awareness about acquired brain injury, and to providing support, education, information, advocacy and other services for individuals with acquired brain injury and their families.

American Academy of Physical Medicine and Rehabilitation

312-464-9700
A medical society for the specialty of physical medicine and rehabilitation, AAPM&R serves the needs of practicing PM&R physicians. With more than 7,500 members, the Academy represents more than 87 percent of US physiatrists and international colleagues from 37 countries.

American Association for People with Disabilities

1-800-840-8844
The American Association of People with Disabilities (AAPD), the country's largest cross-disability membership organization, organizes the disability community to be a powerful voice for change – politically, economically, and socially. AAPD was founded in 1995 to help unite the diverse community of people with disabilities, including their family, friends and supporters, and to be a national voice for change in implementing the goals of the Americans with Disabilities Act (ADA).

American Occupational Therapy Association

301-652-2682

American Physical Therapy Association

1-800-999-2782

American Spinal Cord Injury Association (ASIA)

404-355-9772
ASIA works to promote and establish standards of excellence for individuals with spinal cord injury, to educate members, other healthcare professionals, patients and their families on all aspects of spinal cord injury, to foster research which aims at preventing spinal cord injury, and to facilitate communication between members and other physicians, allied health care professionals, researchers and consumers.

Brain Injury Association of America

1-800-444-6443
Founded in 1980, the Brain Injury Association of America (BIAA) is the leading national organization serving and representing individuals, families and professionals who are touched by a life-altering, often devastating, traumatic brain injury (TBI). Together with its network of more than 40 chartered state affiliates, as well as hundreds of local chapters and support groups across the country, the BIAA provides information, education and support to assist the 3.17 million Americans currently living with traumatic brain injury and their families.

Brain Injury News and Information Blog

1-866-272-4652
Sponsored by the legal offices of De Caro & Kaplen, LLP, the website is committed to improving the quality of life for persons with brain injury, their spouses and family members.

Brain Injury Resource Center

206-621-8558
A non-profit clearinghouse founded and operated by brain injury activists since 1985.

BrainandSpinalCord.Org

BrainandSpinalcord.org's mission is to be the most reliable, timely and complete resource on the internet for brain injury and spinal cord injury survivors. Our hope is that this site will become relied upon as a trustworthy resource for the community and for those who are searching for information.

BrainInjury.net

1-800-800-0640
A comprehensive resource for those seeking medical and legal information related to catastrophic brain injury.

BrainLine

703-998-2020
BrainLine is a national multimedia project offering information and resources about preventing, treating, and living with TBI. BrainLine includes a series of webcasts, an electronic newsletter, and an extensive outreach campaign in partnership with national organizations concerned about traumatic brain injury.

Bucks County Center for Independent Living (PA)

215-781-5070
The Center for Independent Living provides Independent Living Services to individuals with disabilities in Bucks County, Pennsylvania. They offer help with information and referrals, peer support counseling, individual advocacy, and independent living skills training.

Canine Partners For Life

610-869-4902
The organization is dedicated to training service dogs, home companion dogs, and residential companion dogs to assist individuals who have a wide range of physical and cognitive disabilities.

Catastrophic Injury Resource Center

800-669-7700
Catastrophic Injuries - Spinal Cord Injury, Amputation & Brain Injury Resources
This site is being offered as the premier resource center to ensure professional information is made available to the catastrophically injured, to the many people who are searching for critical information on behalf of a loved one, to the family and to the professionals.

Centers for Independent Living

202-245-7378
This program provides support for the planning, conduct, administration, and evaluation of centers for independent living that comply with the standards and assurances in Sec. 725 of the Rehabilitation Act , consistent with state plans for establishing statewide networks of centers.

Centre for Neuro Skills: Traumatic Brain Injury Resource Guide

1-800-922-4994
The TBI Resource Guide is a source of information, services and products relating to traumatic brain injury, brain injury recovery, and post-acute rehabilitation.

Christopher and Dana Reeve Foundation

1-800-225-0292
The Christopher & Dana Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for people living with paralysis through grants, information and advocacy.

Craig Hospital Spinal Cord Injury Nursing Advice

1-800-247-0257
Craig Hospital offers a toll-free hotline for spinal cord injury patients with non-emergent medical questions. This hotline is available to all SCI patients nationwide from Monday through Friday, 9:00 a.m. to 4:00 p.m. MDT.

Darrell Gwynn Foundation

The Darrell Gwynn Foundation exists to prevent, provide for and ultimately cure spinal cord injuries and other debilitating illnesses. To expedite specific cures, the Foundation assists in the funding of targeted research. The Foundation helps improve the quality of life for those already afflicted with injury or illness, by providing necessary equipment or special services. They also have a Wheelchair Donation Program that has been providing customized wheelchairs to children and young adults in need across the country since 2002. The program was started to fulfill the Foundations mission to improve the quality of life for those afflicted with paralysis from injury or illness.

Determined2Heal

703-795-5711
The organization works to simplify the transition into life with paralysis as smoothly and productively as possible. It provides information and advice for people with spinal cord injuries, their families, and their friends.

Disabilities Rights Project of the Public Interest Law Center of Philadelphia (PA)

215-627-7100
This organization is dedicated to ending discrimination and abuse against people with disabilities and securing their inclusion and full participation in all aspects of mainstream society. They provide public and continuing education for clients and client organizations, use the courts to advance self-advocacy, social justice, and equal protection of the law.

DisabledDealer.com

"Our mission is to bring people with disabilities and the elderly complete access to new and pre-owned adaptive equipment, services, resources, and events throughout the country.”

Disaster Preparedness for People with Disabilities

Links are provided to webcasts, books and newsletters, training materials, and other resources, which have been prepared to assist centers for independent living, public officials, emergency preparedness officials, and people with disabilities and their families.

Easy Access Clothing

1-800-775-5536
One-Stop Shopping for the DisAbled Consumer.

Family Savings Partner Program of Open Hearth, Inc. (PA)

610-792-9282
This program helps people with physical disabilities in Chester and Western Montgomery Counties (PA) achieve financial self-sufficiency. They support and empower people as they acquire affordable housing, a means of transportation and financial viability.

Fighting Back Scholarship Program

The mission of the Fighting Back Scholarship Program is to recognize and provide financial assistance for post-rehabilitative exercise to individuals who have suffered a life changing illness or injury and have endured that experience through courage, desire and perseverance.

Foundation for Spinal Cord Injury Prevention, Care and Cure (FSCIPP)

1-800-342-0330
FSCIPCC is committed to improving the quality of care for persons with serious spinal cord injuries and to raising funds that support the search for a cure. FSCIPCC serves as an informational exchange and a forum for people who suffer from spinal cord injuries.

GiveTech

415-750-2576
GiveTech helps people with physical disabilities obtain the necessary input technology to help them use a computer.

GM Mobility Program

1-800-323-9935
GM Mobility offers reimbursement of up to $1000 for eligible adaptive equipment, OnStar service, and other resources for those with special needs or disabilities. This offer applies to new purchases/leases of a GM vehicle.

Hospital to Home: A Spinal Cord Injury Foundation

858-964-4691
The organization assists the newly injured with their challenging transition from hospital to rehabilitation to home.

ICMS International Cell Medicine Society

The International Cellular Medicine Society (ICSM) is a physician led and independent non-profit organization with a mission to advance the use of safe and effective adult stem cell therapies.

ILRU Directory of Centers & SILCs

713-520-0232
ILRU is a national center for information, training, research, and technical assistance in independent living. Its goal is to expand the body of knowledge in independent living and to improve utilization of results of research programs and demonstration projects in this field. It is a program of TIRR (The Institute for Rehabilitation and Research), a nationally recognized medical rehabilitation facility for persons with disabilities.
For a Directory of Centers, visit http://www.ilru.org/html/publications/directory/index.html.

Inglis Foundation

1-866-246-4547
Inglis Foundation is the parent corporation of several entities that provide programs and services designed to enable people with physical disabilities to enjoy life with the greatest amount of independence and mobility. Services include an adult day program, affordable and wheelchair-accessible housing, care management, community employment, specialty nursing care and the Drink-Aide® water bottle.

Inspire

Inspire connects patients, families, friends, caregivers and health professionals for health and wellness support. Inspire works with trusted health partners to build safe and secure health and wellness groups.

Kevin Kitchnefsky Foundation for Spinal Cord Research

570-836-1240
The Kevin Kitchnefsky Foundation is an organization with its primary focus a desire to raise funds for spinal cord injury research. In addition, they provide grants to both organizations and individuals.

Life Rolls On Foundation

866-939-4559
Life Rolls On is a non-profit 501(c)3 that exists to be a resource that provides hope and is an advocate on behalf of young people whose lives have been affected by spinal cord injury (SCI). LRO utilizes action sports to push the boundary of possibility for those with SCI.

Miami Project

1-800-782-6387
The Miami Project is a comprehensive spinal cord injury research center, housed in the Lois Pope LIFE Center, a Center of Excellence at the University of Miami Miller School of Medicine. The Miami Project’s international team of more than 200 scientists, researchers and clinicians take innovative approaches to the challenge of spinal cord injury.

Model Systems Knowledge Translation Center (MSKTC)

206-685-4181
The Model Systems Knowledge Translation Center (MSKTC) summarizes research, identifies health information needs and develops systems for sharing information for the NIDRR model systems programs in traumatic brain injury, spinal cord injury and burn injury.

National Center of Medical Rehabilitation Research (NCMRR)

The NCMRR aims to foster development of scientific knowledge needed to enhance the health, productivity, independence, and quality-of-life of people with disabilities.

National Council on Disability

202-272-2004

National Council on Independent Living

1-877-525-3400
NCIL advances independent living and the rights of people with disabilities through consumer-driven advocacy.

National Institute of Neurological Disorders and Stroke (NINDS)

1-800-352-9424
NINDS helps patients reduce the burden of neurological disease - a burden borne by every age group, by every segment of society, by people all over the world.

National Mobility Equipment Dealers Association

1-800-833-0427
NMEDA is a non-profit trade association of mobility equipment dealers, driver rehabilitation specialists, and other professionals dedicated to broadening the opportunities for people with disabilities to drive or be transported in vehicles modified with mobility equipment.

National Organization on Disability

202-293-5980

National Spinal Cord Injury Association

1-800-962-9629
The mission of The National Spinal Cord Injury Association (NSCIA) is to enable people with spinal cord injury and disease (SCI/D) to achieve their highest level of independence, health, and personal fulfillment by providing resources, services, and peer support.

New Mobility

888-850-0344
New Mobility is a publication that encourages the integration of active-lifestyle wheelchair users into mainstream society, while simultaneously reflecting the vibrant world of disability-related arts, media, advocacy and philosophy.

Paralyzed Veterans of America

1-800-795-4327
Paralyzed Veterans of America works to maximize the quality of life for its members and all people with SCI/D as a leading advocate for health care, SCI/D research and education, veterans’ benefits and rights, accessibility and the removal of architectural barriers, sports programs, and disability rights.

Perspectives Network

The organization focuses on building positive communication between persons with brain injury, family members/ caregivers/friends of persons with brain injury, those many professionals who treat persons with brain injury and community members in order to create positive changes and enhance public awareness and knowledge of acquired/traumatic brain injury.

Professional Fit Clothing

1-800-422-2348
Adaptive clothing solutions.

Rehabilitation Institute of Chicago: LIFE Center

312-238-5433
.

Residential Living Options (PA)

610-701-9301
This organization assists people living in Chester County, Pennsylvania with disabilities and their families in the pursuit of self-determined housing by providing creative options, education, and community collaboration.

Resources for Independent Living (NJ & PA)

609-747-7745
RIL is a community-based member organization whose purpose is to serve people with disabilities. It provides people with a wide range of disabilities the means for self-choice, self-direction, and self-reliance in an inclusive society that offers equal rights and privileges to all.

Ride-Away

1-877-833-3641
Ride-Away is America's largest provider of accessible vehicles, vehicle modifications, and adaptive equipment including hand controls, wheelchair and scooter lifts, ramps, raised doors, lowered floors and specialized gas, brake and steering controls. Over 350 accessible vehicles, from manufacturers such as Braun and Viewpoint, are in stock throughout our 11 East Coast locations.

Riderdown Foundation

Riderdown is a non-profit organization dedicated to helping responsible off road motorcyclists and ATV racers who have been injured while riding. Proceeds are used to provide assistance to the riders and their families when faced with medical expenses and related issues.

Road 2 Recovery Foundation

480-276-1131
This organization is dedicated to helping AMA licensed professional motocross/supercross members with financial assistance if they sustain career-ending injuries as well as providing motivational, emotional, and spiritual support to these individuals and their families.

Roll On Ron

The mission of Roll On Ron is to promote active participation and financial support for programs and activities that help individuals and communities develop positive attitudes and improve their quality of life. To help people reach their dreams and overcome unusual obstacles and challenges.

Sam Schmidt Paralysis Foundation

317-236-9999
The foundation helps individuals overcome spinal cord injuries and other neurological disorders by funding scientific research, medical treatment, rehabilitation and technological advances.

Spinal Cord Central

Operated jointly by National Spinal Cord Injury Association (NSCIA) and United Spinal Association, Spinal Cord Central is a web-based resource for people with paralysis as a result of spinal cord injury or disease, their families, friends and others who have an interest or involvement in persons with SCI/D, including health care and other professionals, direct service providers, and businesses focused primarily on serving this market.

Spinal Cord Injury Information Network

205-934-3283
This website offers educational materials and information on services of the UAB Spinal Cord Injury Model System (UAB-SCIMS) along with links to national organizations, government agencies, commercial products, and educational resources related to spinal cord injury

Spinal Cord Injury Information Pages

This site is a free and informative resource for those living with a spinal cord injury or other disabling injuries or diseases of the spine. It is meant to be a "best of the web" site for SCI health and caregiver information.

Spinal Cord Injury Zone

The non-profit organization provides reliable news on spinal cord injury-related issues. Community members can post information of importance to the web site.

Spinal Cord Resources Network, Inc.

The site for news and information for the disabled community.

Step Now

The purpose of the site is to explore and develop global plans to aid in the fight for a cure for paralysis.

SWIM WITH MIKE

213-740-4155
SWIM WITH MIKE is an annual swim-a-thon held to raise money for the USC Physically Challenged Athletes Scholarship Fund. The goal is to help pave the way for individuals to overcome their tragedies and strive for a brighter future.

The Art Ability Program of the Bryn Mawr Rehabilitation Program (PA)

610-251-5607
This organization supports and celebrates the creativity, determination and full participation of artists with disabilities. It holds an annual international, juried exhibition and sale of art and fine crafts by artists with physical, cognitive, hearing and visual disabilities.

Travis Roy Foundation

617-619-8257
Financial help for spinal cord injury patients.

Tri-State Advocacy Project

1-877-774-6380 
An advocacy organization for spinal cord and burn injured survivors and amputees.

Unite 2 Fight Paralysis

The non-profit organization is dedicated to the realization of curative therapies in the immediate future, and to achieve this goal will present a united & consistent message to government, industry, science, the media and the general public.

United Spinal Association

1-800-404-2898
United Spinal Association is a national nonprofit membership organization formed in 1946 by paralyzed veterans. Its mission is to improve the quality of life of Americans with spinal cord injuries and disorders (SCI/D). Membership is free and open to all individuals with spinal cord injuries and diseases.

USA Jeans

1-800-935-5170
Pants designed for wheelchair users.

VSA Arts

1-800-933-8721
VSA arts is an international nonprofit organization founded 35 years ago by Ambassador Jean Kennedy Smith to create a society where people with disabilities learn through, participate in, and enjoy the arts.

Wheelchair Nation

This website provides an electronic directory for spinal cord injury patients.

Wings for Life - Spinal Cord Research Foundation

The Wings for Life Spinal Cord Research Foundation is a privately funded non-profit organization which follows the principal aim of promoting research worldwide in order to expedite scientific and clinical progress towards a putative cure for Spinal Cord Injury (SCI) Paralysis.

Bryn Mawr Rehab Hospital (PA)

1-888-724-2241

Challenge Center (CA)

619-667-8644
The Challenge Center is committed to provide skilled physical therapy, specialized fitness and wellness programs to rehabilitate, raise the level of independence, and improve the quality of life for children, adults and seniors with severe disabilities, as well as their families and caregivers.

Chanda Plan Foundation

303-246-4290
Financial help for alternative therapies for patients with impaired or limited mobility.

Gentiva – Rehab Without Walls

1-888-436-8482
The Rehab Without Walls program offered by Gentiva is focused on providing patients with the functional skills necessary to participate in practical daily activities at home, school, work or in the community where they live.

International Center for Spinal Cord Injury at Kennedy Krieger Institute (ICSCI)

1-888-554-2080
ICSCI combines innovative research with a unique focus on restoration and rehabilitation for children and adults with chronic paralysis.

Magee Rehabilitation (PA)

1-800-966-2433
Magee Rehabilitation offers one of the nation's leading rehabilitation programs for people with spinal cord injuries. Magee's spinal cord injury services include an expert clinical inpatient program; state-of-the-art assistive and therapeutic technology; unique outpatient therapy programs; and community reintegration services. Lifetime follow-up care is coordinated through Magee to address the unique health and community reintegration concerns of people with SCI.

NextStep Fitness, Inc. (CA)

310-542-8868
A California Non-Profit Corporation, the goal of NextStep Fitness, Inc. is to create a fitness environment for individuals with physical disabilities - where everyday fitness & wellness is available and supported in a state-of-the-art facility.

Pegasus Riding Academy (PA)

215-742-1500
Pegasus Therapeutic Riding Academy was incorporated in 1982 with the purpose of providing disabled individuals with therapeutic activity and exercise in various forms, while concentrating on ability rather than disability.

Pennsylvania Center For Adapted Sports

215-765-5118
The Center is dedicated to promoting active lifestyles, healthy living, and personal growth for people with disabilities.

Project Walk

760-431-9789
Project Walk “exists to provide an improved quality of life for people with spinal cord injuries through intense exercise-based recovery programs, education, support and encouragement.” They do this at various regional centers both nationally and internationally. Locations are listed on the website.

Push to Walk

862-200-5848
Serving the Push to Walk's mission is to help improve the overall quality of life for people with spinal cord injuries (SCI) through exercise based, recovery oriented training.

Pushing Boundaries (WA)

425-869-9506
The Pushing Boundaries Training System is designed to incrementally reeducate damaged nervous systems to regain movement, increase function and independence, and ultimately improve the lives of those living with paralysis.

Quest to Walk

913-451-1500
Quest to Walk is dedicated to helping people with spinal cord injuries improve and enrich their lives through the use of state-of-the-art recovery methods, motivation, and education in a supportive environment.

SCI Recovery Project (SCIRP)

303-440-7304
SCIRP specializes in providing exercise-based recovery programs for individuals who have suffered a spinal cord injury, stroke, or similar traumas.

SCI-Step, Inc. (OH)

513-459-2282
The facility provides activity-based rehabilitation, physical therapy and occupational therapy combined with a holistic approach to health in the environment for spinal cord and other neurologically injured individuals to excel.

Shepherd Center (GA)

404-352-2020
Shepherd Center's mission is to help people with a temporary or permanent disability caused by injury or disease, rebuild their lives with hope, independence and dignity, advocating for their full inclusion in all aspects of community life while promoting safety and injury prevention.

United States Quad Rugby Association

512-791-2644
The United States Quad Rugby Association exists to provide opportunity, support, and structure for competitive wheelchair rugby to people with disabilities. We are here to help people get involved in the fastest growing wheelchair sport in the world.

Able Trust (FL)

1-888-838-2253
The organization works to be the leader in providing Floridians with disabilities fair employment opportunities through fundraising, grant programs, public awareness and education.

American Kidney Fund

1-800-638-8299
The mission of the American Kidney Fund is to fight kidney disease through direct financial support to patients in need; health education; and prevention efforts.

Andre Sobel River of Life Foundation

The Andre Sobel River of Life Foundation helps with urgent expenses to allow single parents to stay at their child's bedside during catastrophic illness.

BenefitsCheckUp

1-800-772-1213
A web-based service to screen for benefits programs for seniors with limited income and resources. It is developed and maintained by the National Council on Aging.

Caring Voice Coalition

1-888-267-1440
Caring Voice Coalition is dedicated to building relationships with charitable organizations founded to help individuals and families affected by serious chronic disorders and diseases. Caring Voice will work together with these organizations to offer outreach and support services that directly benefit the patient community.

Challenged Athletes Foundation

858-866-0959
The Challenged Athletes Foundation provides opportunities and support to people with physical disabilities so they can pursue active lifestyles through physical fitness and competitive athletics.

Chanda Plan Foundation

303-246-4290
Financial help for alternative therapies for patients with impaired or limited mobility.

Children's Leukemia Research Association

516-222-1944

Chronic Disease Fund

1-877-968-7233
Provides medication co-pay assistance for the underinsured.

Dispensary of Hope

1-888-428-4673
The Dispensary of Hope is a non-profit network of dispensing sites, sourcing partners and financial partners that assist people without prescription drug coverage.

Families of the Wounded Fund

The organization works to provide financial resources in support of family members/caregivers of military service men and women who have either been wounded in combat operations or injured as the result of line-of-duty activities in support of combat operations.

Fighting Back Scholarship Program

The mission of the Fighting Back Scholarship Program is to recognize and provide financial assistance for post-rehabilitative exercise to individuals who have suffered a life changing illness or injury and have endured that experience through courage, desire and perseverance.

Four Diamonds Fund (PA)

717-531-7939
The organization works to conquer childhood cancer by assisting children treated at Penn State Hershey Children's Hospital and their families through superior care, comprehensive support, and innovative research.

Friends of Karen

Friends of Karen’s mission is to provide emotional, financial, and advocacy support for children with life-threatening illnesses and their families, in order to help keep them stable, functioning, and able to cope.

GM Mobility Program

1-800-323-9935
GM Mobility offers reimbursement of up to $1000 for eligible adaptive equipment, OnStar service, and other resources for those with special needs or disabilities. This offer applies to new purchases/leases of a GM vehicle.

Healthwell Foundation

1-800-675-8416
The HealthWell Foundation® is a 501(c)(3) non-profit organization that is committed to addressing the needs of individuals with insurance who cannot afford their copayments, coinsurance, and premiums for important medical treatments.

Heroes for Children (TX)

214-256-5824
A non-profit organization providing financial and social assistance to families of children battling cancer in Texas.

Hospital to Home: A Spinal Cord Injury Foundation

858-964-4691
The organization assists the newly injured with their challenging transition from hospital to rehabilitation to home.

Kevin Kitchnefsky Foundation for Spinal Cord Research

570-836-1240
The Kevin Kitchnefsky Foundation is an organization with its primary focus a desire to raise funds for spinal cord injury research. In addition, they provide grants to both organizations and individuals.

Kidney Drug Coverage

1-800-622-9010
A site developed by the Kidney Medicare Drugs Awareness and Education Initiative to provide timely, consistent, reliable, and up-to-date information about Medicare and Medicare Prescription Drug Coverage (Part D), specifically for kidney patients and the healthcare professionals involved in their care.

Managed RX Plans

1-800-799-8765
Managed RX Plans is a pharmacy that provides prescription drugs at zero cost to those who have an acceptable major medical insurance with prescription coverage (after they have met their deductible).

ModestNeeds.Org

East Coast: 212-463-7042
West Coast: 415-956-9395
ModestNeeds.Org is a non-profit organization that provides grants to individuals and other nonprofits for specific needs. These grants include self-sufficiency grants for a small, emergency expense, back-to-work grants, independent living grants, and nonprofit grants.

My Friends Care Cancer Fund

Providing expertise, support and education to families and friends raising funds to benefit cancer patients; and to provide funding for community donor drives.

National Foundation of Dentistry for the Handicapped (NFDH)

303-534-5360
The NFDH offers a Donated Dental Services (DDS) program that provides free dental care to disabled, elderly, or medically compromised individuals.

National Living Donor Assistance Center

703-414-1600
The organization provides financial assistance to those who want to donate an organ, priority is given to individuals not otherwise able to afford the travel and subsistence expenses associated with living organ donation.

Nielsen Organ Transplant Foundation (FL)

904-244-9823
The NOTF works to improve the quality of life for organ transplant patients in Northeast Florida. Its programs include financial assistance, donor awareness, mentoring, information and resources.

Patient Access Network Foundation (PAN)

1-866-316-7263
PAN is an independent, non-profit dedicated to assisting patients who cannot afford the out-of-pocket costs associated with their treatment needs. With 20 disease-specific funds, PAN assists the underinsured in accessing health care treatments.

Patient Services Incorporated (PSI)

1-800-366-7741
PSI is a health insurance premium and co-payment organization for people who live with certain chronic illnesses and conditions.

Riderdown Foundation

Riderdown is a non-profit organization dedicated to helping responsible off road motorcyclists and ATV racers who have been injured while riding. Proceeds are used to provide assistance to the riders and their families when faced with medical expenses and related issues.

Road 2 Recovery Foundation

480-276-1131
This organization is dedicated to helping AMA licensed professional motocross/supercross members with financial assistance if they sustain career-ending injuries as well as providing motivational, emotional, and spiritual support to these individuals and their families.

RxHope

1-877-979-4673
RxHope is a web-based patient assistance resource, processing, fulfilling and tracking patient’s requests for medication assistance.

Sam Schmidt Paralysis Foundation

317-236-9999
The foundation helps individuals overcome spinal cord injuries and other neurological disorders by funding scientific research, medical treatment, rehabilitation and technological advances.

SAMFund for Young Adult Survivors of Cancer

The SAMFund is a non-profit organization created to assist young adult survivors of cancer with a successful transition into their post-treatment life, by providing financial support through the distribution of grants and scholarships.

Smart Medical Consumer

Smart Medical Consumer is dedicated to helping people understand and manage their personal and family medical expenses.

The Pennsylvania Assistive Technology Foundation (PATF)

1-888-744-1938
PATF is a non-profit organization that provides low-interest loans to people with disabilities and older adults so that they can buy the assistive technology devices and services they need.

TIGER Transplant Fund

The TIGER Fund coordinates medical data on organ transplantation, organ donor information, white papers about transplantation, liver disease, liver health, and family support programs for transplant families, and caregivers. It also offer a number of ways to help the transplant community with direct aid, grants and gifts.

Transplant Foundation, Inc.

305-817-5645
Transplant Foundation focuses on providing both financial and emotional support to transplant patients.

Travis Roy Foundation

617-619-8257
Financial help for spinal cord injury patients.

UnitedHealthcare Children’s Foundation (UHCCF)

1-800-328-5979
The UnitedHealthcare Children's Foundation is a non-profit Section 501(c)(3) charity that works to provide financial assistance to fill the gaps in pediatric health care coverage for treatment, services or equipment.

Atlanta Hospital Hospitality House (GA)

404-377-6333
The Hospitality House strives to provide a home for outpatients and relatives of patients hospitalized in 21 Atlanta area hospitals.

Bucks County Center for Independent Living (PA)

215-781-5070
The Center for Independent Living provides Independent Living Services to individuals with disabilities in Bucks County, Pennsylvania. They offer help with information and referrals, peer support counseling, individual advocacy, and independent living skills training.

Centers for Independent Living

202-245-7378
This program provides support for the planning, conduct, administration, and evaluation of centers for independent living that comply with the standards and assurances in Sec. 725 of the Rehabilitation Act , consistent with state plans for establishing statewide networks of centers.

Family House (Pittsburgh, PA)

412-647-7777
Family House provides a special "home away from home" for patients and families who are in Pittsburgh for treatment of serious or life-threatening illnesses.

Gift of Life Transplant House (MN)

507-288-7470
A relocation resource for transplant patients of Mayo Clinic in Rochester, Minnesota.

Hope Lodges

1-800-227-2345
Hope Lodges offer cancer patients and their families a free, temporary place to stay when their best hope for effective treatment may be in another city.

Hosts for Hospitals (Philadelphia, PA)

215-472-3801
The organization's goal is to provide free lodging and support at volunteer-host homes as a caring response to the housing needs of patients and their families who come to the Greater Philadelphia area for specialized medical care.

ILRU Directory of Centers & SILCs

713-520-0232
ILRU is a national center for information, training, research, and technical assistance in independent living. Its goal is to expand the body of knowledge in independent living and to improve utilization of results of research programs and demonstration projects in this field. It is a program of TIRR (The Institute for Rehabilitation and Research), a nationally recognized medical rehabilitation facility for persons with disabilities.
For a Directory of Centers, visit http://www.ilru.org/html/publications/directory/index.html.

Joe's House

1-877-563-7468
Joe's House is a nonprofit organization providing a nation-wide online service that helps patients and their families find lodging near treatment centers.

Lung Connection (CO)

303-341-0489
The Lung Connection is a non-profit organization that provides both affordable housing and support to patients of the University of Colorado Hospital Lung Transplant Team.

Miracle House (NY)

212-989-7790
Miracle House, New York City's "Hope Away From Home", provides temporary housing and support services for caregivers and patients coming to New York City for critical medical treatment.

National Association of Hospital Hospitality Houses (NAHHH)

1-800-542-9730
The mission of the NAHHH is to support homes that help and heal to be more effective in their service to their patients and families.

National Council on Independent Living

1-877-525-3400
NCIL advances independent living and the rights of people with disabilities through consumer-driven advocacy.

Residential Living Options (PA)

610-701-9301
This organization assists people living in Chester County, Pennsylvania with disabilities and their families in the pursuit of self-determined housing by providing creative options, education, and community collaboration.

Resources for Independent Living (NJ & PA)

609-747-7745
RIL is a community-based member organization whose purpose is to serve people with disabilities. It provides people with a wide range of disabilities the means for self-choice, self-direction, and self-reliance in an inclusive society that offers equal rights and privileges to all.

Ronald McDonald House Program

630-623-7488
Ronald McDonald Houses around the world offer families a way to stay together, in proximity to the treatment hospital, and be comfortable and cared for during their stay.

The Mason House (GA)

404-712-5110
The Mason House is a private retreat that offers low cost housing for organ transplant candidates, recipients, living donors, and families.

Virtual CIL

Directory of Independent Living Centers.

Chronic Disease Fund

1-877-968-7233
Provides medication co-pay assistance for the underinsured.

Dispensary of Hope

1-888-428-4673
The Dispensary of Hope is a non-profit network of dispensing sites, sourcing partners and financial partners that assist people without prescription drug coverage.

Good Life Resources

800- 227-2111
Good Life Resources is a full-service pharmacy that specializes in chronic health conditions, including a focus on providing specialty drugs for Organ Transplant, Multiple Sclerosis, RA and Arthritis, Fibromyalgia, Diabetes, HIV/AIDS, COPD, and Cancer. They also provide assistance with insurance and paperwork.

Healthwell Foundation

1-800-675-8416
The HealthWell Foundation® is a 501(c)(3) non-profit organization that is committed to addressing the needs of individuals with insurance who cannot afford their copayments, coinsurance, and premiums for important medical treatments.

HHCS Health Group and Cystic Fibrosis Pharmacy

1-888-307-4427
The Cystic Fibrosis Pharmacy advocates for the best choice for independent comprehensive and complete CF pharmacy care. It offers quality pharmaceuticals, regular shipping, personal reimbursement assistance, specially compounded medications and access to compassionate care programs.

Kidney Drug Coverage

1-800-622-9010
A site developed by the Kidney Medicare Drugs Awareness and Education Initiative to provide timely, consistent, reliable, and up-to-date information about Medicare and Medicare Prescription Drug Coverage (Part D), specifically for kidney patients and the healthcare professionals involved in their care.

Managed RX Plans

1-800-799-8765
Managed RX Plans is a pharmacy that provides prescription drugs at zero cost to those who have an acceptable major medical insurance with prescription coverage (after they have met their deductible).

NeedyMeds, Inc.

NeedyMeds is a non-profit with the mission of helping patients who cannot afford medicine or healthcare costs. The information at NeedyMeds is available anonymously and free of charge. NeedyMeds also offers a drug discount card that saves patients up to 75% or more off the cost of prescription medicines and over-the-counter drugs.

Partnership For Prescription Assistance (PPA)

1-888-477-2669
The mission of the Partnership For Prescription Assistance (PPA) is to increase awareness of patient assistance programs and boost enrollment of those who are eligible.

PatientAssistance.com

1-888-788-7921
PatientAssistance.com is a free resource designed to help connect patients who can’t afford their prescription medications with patient assistance programs.

PMORx

PMORx is a specialty pharmacy that distributes pharmaceuticals and provides specialized patient management services nationwide for people with long-term chronic conditions.

RX Assist

Rx Assist is a website with information, news, and a database designed to help patients find affordable, or free medications.

RxHope

1-877-979-4673
RxHope is a web-based patient assistance resource, processing, fulfilling and tracking patient’s requests for medication assistance.

Together RX Access

1-800-444-4106
Together RX Access offers patients the opportunity to obtain prescriptions at a discounted rate (normally 25-40%) through their Together RX Access Card. Over 300 brand-name prescription medications and products are included and the card is accepted at the majority of pharmacies in the U.S.

American Academy on Communication in Healthcare (AACH)

636-449-5080
AACH improves the effectiveness of healthcare by focusing on education, research and practice in communication and partnerships among patients, families and healthcare teams.

American Cancer Society

1-800-227-2345

American Diabetes Association

Aplastic Anemia & MDS International Foundation, Inc.

1-800-747-2820
The oldest and largest patient advocate and support organization for bone marrow diseases, providing life-saving hope, knowledge, and support to patients and their families around the world.

ARCH National Respite Network

919-490-5577
This program supports a national network of federally funded respite and crisis care programs for children with disabilities, chronic illness and at risk of abuse and neglect. Resources include a national respite locator service, guides for starting respite programs in communities, and fact sheets on a variety of topics related to respite and crisis care for children and their families and families caring for the elderly.

Cancer Care, Inc.

CancerCare is a national nonprofit, 501 c(3) organization that provides free, professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved.

Caring Connections

1-800-658-8898
1-877-658-8896 (para espanol)
A national consumer engagement initiative to improve care at the end of life. It provides resources and information to help people make decisions about end-of-life care and services before a crisis and connect them with the resources they need, when they need them.

CaringBridge

CaringBridge is a 501(c)(3) nonprofit providing free websites that connect family and friends during a serious health event, care and recovery.

Change:Healthcare

1-800-655-0732
An online service for medical consumers.

Charity Navigator

201-818-1288
An independent charity evaluator that works to advance a more efficient and responsive philanthropic marketplace by evaluating the financial health of over 5,400 of America's largest charities.

Children's Leukemia Research Association

516-222-1944

Cystic Fibrosis Foundation

1-800-344-4823
The Cystic Fibrosis Foundation’s website provides substantial information for the CF patient including lung transplantation. It also offers help in understanding public assistance programs, insurance coverage, a legal information hotline, and scholarship information for CF patients interested in college.

Disaster Preparedness for People with Disabilities

Links are provided to webcasts, books and newsletters, training materials, and other resources, which have been prepared to assist centers for independent living, public officials, emergency preparedness officials, and people with disabilities and their families.

DKMS

The DKMS mission is to save lives by recruiting bone marrow donors for leukemia patients. More than 20,000 DKMS donors have helped save lives by donating their bone marrow. DKMS is the largest bone marrow donor center in the world with over 2 million registered donors. However, there are still thousands of patients who cannot find their donor match. DKMS will continue to recruit bone marrow donors until every patient gets a second chance at life.

Families of the Wounded Fund

The organization works to provide financial resources in support of family members/caregivers of military service men and women who have either been wounded in combat operations or injured as the result of line-of-duty activities in support of combat operations.

Four Diamonds Fund (PA)

717-531-7939
The organization works to conquer childhood cancer by assisting children treated at Penn State Hershey Children's Hospital and their families through superior care, comprehensive support, and innovative research.

Gilda's Club Worldwide

1-888-445-3248
A cancer support community for men, women and children with any type of cancer, and their families and friends.

Healing Project

A non-profit organization dedicated to promoting the health and well-being of individuals suffering from life-threatening illnesses and chronic diseases.

Healthfinder.gov

When making decisions about your health, it’s important to know where to go to get the latest, most reliable information. Healthfinder.gov has resources on a wide range of health topics selected from over 1,600 government and non-profit organizations to bring you the best, most reliable health information on the Internet.

Hep C Connection

1-800-522-4372
The organization educates the general public about hepatitis C and provides resources and support for those affected by the virus.

I'm Too Young For This!

The mission of this organization is to empower young adults affected by cancer by: reducing late detection, ending isolation, improving quality of life, and providing meaningful survivorship.

Inspire

Inspire connects patients, families, friends, caregivers and health professionals for health and wellness support. Inspire works with trusted health partners to build safe and secure health and wellness groups.

Juvenile Diabetes Research Foundation International

1-800-533-2873
The Juvenile Diabetes Research Foundation International is dedicated to research and advocacy for the JD patient. Their website offers the latest research news, help with advocacy for patients, including local chapter information.

Leukemia and Lymphoma Society

1-800-955-4572

Livestrong

Livestrong works to empower the cancer community to address the unmet needs of cancer survivors. To do so, they encourage collaboration, knowledge-sharing and partnership.

Lotsa Helping Hands

The mission of Lotsa Helping Hands is to provide the communication resources facilitating a world where caregivers feel empowered to ask for help, and in so doing, improve their own health and quality-of-life; volunteers can become part of the solution when family, friends, neighbors or colleagues are in need of help, and community becomes a recognized way to find meaning in both giving and receiving.

Lupus Foundation of America

1-800-558-0121

Lymphoma Research Foundation (LRF)

1-800-235-6848
LRF is the nation's largest lymphoma-focused voluntary health organization devoted exclusively to funding lymphoma research and providing patients and health care professionals with critical information on the disease. LRF's mission is to eradicate lymphoma and serve those touched by this disease.

MedlinePlus

MedlinePlus will direct you to information to help answer health questions. MedlinePlus brings together authoritative information from NLM, the National Institutes of Health (NIH), and other government agencies and health-related organizations. Preformulated MEDLINE searches are included in MedlinePlus and give easy access to medical journal articles. MedlinePlus also has extensive information about drugs, an illustrated medical encyclopedia, interactive patient tutorials, and latest health news.

My Friends Care Cancer Fund

Providing expertise, support and education to families and friends raising funds to benefit cancer patients; and to provide funding for community donor drives.

MyLifeLine.org

A nonprofit that offers free personal websites to cancer patients.

National Children's Cancer Society

The mission of The National Children's Cancer Society (N.C.C.S.) is to improve the quality of life for children with cancer and their families worldwide. They do this through financial assistance, college scholarships, and other means of support.

National Foundation of Dentistry for the Handicapped (NFDH)

303-534-5360
The NFDH offers a Donated Dental Services (DDS) program that provides free dental care to disabled, elderly, or medically compromised individuals.

National Institute of Diabetes and Digestive Kidney Disease (NIDDK)

301-496-3583
The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) conducts and supports basic and clinical research on many of the most serious diseases affecting public health. The web site provides considerable health care and research information.

National Multiple Sclerosis Society

1-800-344-4867

National Organization for Rare Disorders, Inc. (NORD)

203-744-0100
NORD is a federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

SAMFund for Young Adult Survivors of Cancer

The SAMFund is a non-profit organization created to assist young adult survivors of cancer with a successful transition into their post-treatment life, by providing financial support through the distribution of grants and scholarships.

Smart Medical Consumer

Smart Medical Consumer is dedicated to helping people understand and manage their personal and family medical expenses.

Stephanie Robinson Foundation

The foundation is committed to helping make a difference in the lives of leukemia and lymphoma patients and their caregivers.

The Planet Cancer

An online community of peer support and advocacy for young adults with cancer.

Well Spouse Association

1-800-838-0879
A national, non-profit organization that offers support to spouses or partners of people with chronic illness and/or disability.

Acquired Brain Injury Network of Pennsylvania, Inc. (PA)

1-800-516-8052
The organization is dedicated to increasing public awareness about acquired brain injury, and to providing support, education, information, advocacy and other services for individuals with acquired brain injury and their families.

Ambulimo

215-744-4544
Serving the Greater Philadelphia Region, Ambulimo was created to provide comfort and hope to those undergoing constant medical treatment. Certified EMT chauffeurs, top of the line ambulance equipment, custom-built gel mattresses, soothing music, and a flower to end each trip, are just some of the many features that make Ambulimo unique.

Angel Flight Mid-Atlantic

1-800-296-3797
Serving the District of Columbia, Delaware, Kentucky, Maryland, Michigan, Ohio, Pennsylvania (Flights departing PA going generally east or north are handled by Angel Flight Northeast. Flights going generally south or west from PA are handled by Angel Flight Mid-Atlantic), Virginia and West Virginia.

Angel Flight Northeast

978-794-6868
Serving Connecticut, Maine, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, and Vermont.

Bryn Mawr Rehab Hospital (PA)

1-888-724-2241

Bucks County Center for Independent Living (PA)

215-781-5070
The Center for Independent Living provides Independent Living Services to individuals with disabilities in Bucks County, Pennsylvania. They offer help with information and referrals, peer support counseling, individual advocacy, and independent living skills training.

Disabilities Rights Project of the Public Interest Law Center of Philadelphia (PA)

215-627-7100
This organization is dedicated to ending discrimination and abuse against people with disabilities and securing their inclusion and full participation in all aspects of mainstream society. They provide public and continuing education for clients and client organizations, use the courts to advance self-advocacy, social justice, and equal protection of the law.

Family House (Pittsburgh, PA)

412-647-7777
Family House provides a special "home away from home" for patients and families who are in Pittsburgh for treatment of serious or life-threatening illnesses.

Family Savings Partner Program of Open Hearth, Inc. (PA)

610-792-9282
This program helps people with physical disabilities in Chester and Western Montgomery Counties (PA) achieve financial self-sufficiency. They support and empower people as they acquire affordable housing, a means of transportation and financial viability.

Four Diamonds Fund (PA)

717-531-7939
The organization works to conquer childhood cancer by assisting children treated at Penn State Hershey Children's Hospital and their families through superior care, comprehensive support, and innovative research.

His Wings Aviation Ministries

570971-4074
Serving Pennsylvania.

Hosts for Hospitals (Philadelphia, PA)

215-472-3801
The organization's goal is to provide free lodging and support at volunteer-host homes as a caring response to the housing needs of patients and their families who come to the Greater Philadelphia area for specialized medical care.

Inglis Foundation

1-866-246-4547
Inglis Foundation is the parent corporation of several entities that provide programs and services designed to enable people with physical disabilities to enjoy life with the greatest amount of independence and mobility. Services include an adult day program, affordable and wheelchair-accessible housing, care management, community employment, specialty nursing care and the Drink-Aide® water bottle.

Magee Rehabilitation (PA)

1-800-966-2433
Magee Rehabilitation offers one of the nation's leading rehabilitation programs for people with spinal cord injuries. Magee's spinal cord injury services include an expert clinical inpatient program; state-of-the-art assistive and therapeutic technology; unique outpatient therapy programs; and community reintegration services. Lifetime follow-up care is coordinated through Magee to address the unique health and community reintegration concerns of people with SCI.

Pegasus Riding Academy (PA)

215-742-1500
Pegasus Therapeutic Riding Academy was incorporated in 1982 with the purpose of providing disabled individuals with therapeutic activity and exercise in various forms, while concentrating on ability rather than disability.

Pennsylvania Center For Adapted Sports

215-765-5118
The Center is dedicated to promoting active lifestyles, healthy living, and personal growth for people with disabilities.

Pennsylvania Health Law Project (PA)

1-800-274-3258
PHLP is a nationally recognized expert and consultant on access to health care for low-income consumers, the elderly, and persons with disabilities. PHLP provides free legal services to lower-income consumers, seniors, and persons with disabilities who are having trouble accessing publicly funded healthcare coverage or services.

Residential Living Options (PA)

610-701-9301
This organization assists people living in Chester County, Pennsylvania with disabilities and their families in the pursuit of self-determined housing by providing creative options, education, and community collaboration.

Resources for Independent Living (NJ & PA)

609-747-7745
RIL is a community-based member organization whose purpose is to serve people with disabilities. It provides people with a wide range of disabilities the means for self-choice, self-direction, and self-reliance in an inclusive society that offers equal rights and privileges to all.

The Art Ability Program of the Bryn Mawr Rehabilitation Program (PA)

610-251-5607
This organization supports and celebrates the creativity, determination and full participation of artists with disabilities. It holds an annual international, juried exhibition and sale of art and fine crafts by artists with physical, cognitive, hearing and visual disabilities.

The Pennsylvania Assistive Technology Foundation (PATF)

1-888-744-1938
PATF is a non-profit organization that provides low-interest loans to people with disabilities and older adults so that they can buy the assistive technology devices and services they need.

VSA Arts of Pennsylvania (PA)

215-564-2431
This organization is a professional theatre which includes experienced artists with disabilities and provides complete accessibility to its audiences. VSA arts works with artists with disabilities to help them develop professional careers.

Alliance for Paired Donation

877-273-4255

American Association of Tissue Banks (AATB)

703-827-9582
AATB is the only national tissue banking organization in the United States, and our membership totals more than 100 accredited tissue banks and 1,100 individual members. These banks recover tissue from more than 30,000 donors and distribute in excess of two million allografts for transplant annually.

American Board for Transplant Certification (ABTC)

913-895-4603
The American Board for Transplant Certification is an independent, not for profit organization that was founded in 1988. Its purpose is to award a voluntary, non-governmental certification credential, "Certified Clinical Transplant Coordinator (CCTC) or "Certified Procurement Transplant Coordinator (CPTC)," to qualified transplant professionals who have successfully passed the certification examination, which represents a standard of competence.

American Diabetes Association

American Heart Association

1-800-242-8721

American Kidney Fund

1-800-638-8299
The mission of the American Kidney Fund is to fight kidney disease through direct financial support to patients in need; health education; and prevention efforts.

American Liver Foundation

1-800-465-4837

American Lung Association

1-800-586-4872

American Society for Transplant Surgeons (ASTS)

703-414-7870
ASTS is committed to fostering and advancing the practice and science of transplantation for the benefit of patients and society.

Association of Organ Procurement Organizations (AOPO)

703-556-4242
AOPO represents and serves OPOs through advocacy, support, and development of activities that will maximize the availability of organs and tissues and enhance the quality, effectiveness, and integrity of the donation process.

Blood and Marrow Transplant Information Network (BMT InfoNet)

888-597-7674
Blood & Marrow Transplant Information Network (BMT InfoNet) is dedicated to providing transplant patients, survivors and their loved ones with emotional support and high quality, easy-to-understand information about bone marrow, peripheral blood stem cell and cord blood transplants.

BMT Support Online

BMTSupport.org is an interactive non-profit 501(c)(3) organization which seeks to motivate, empower and enlighten people with an interest in bone marrow transplantation through peer support, education and awareness of this difficult but potentially life saving procedure.

Bone Marrow and Cord Blood Donation and Transplantation

This website is a program of the U.S. Department of Health and Human Services. It provides access to information about bone marrow and cord blood transplants. This includes information about patient resources, current research and legislation.

Bone Marrow Foundation

1-800-365-1336
The organizatioin works to improve the quality of life for children and adults who are undergoing transplantation as a life saving treatment for leukemia, Hodgkin's and non-Hodgkin's lymphomas, multiple myeloma, aplastic anemia, severe combined immunodeficiency, neuroblastoma and many other cancers and genetic disorders. The Foundation does not limit assistance to a specific disease, type of transplant or age range. All of the foundation’s services are offered free to patients and their families.

Caitlin Raymond International Registry

800-726-2824
The Caitlin Raymond International Registry is a comprehensive resource for patients and physicians conducting a search for unrelated bone marrow or cord blood donor.

Center for International Blood and Marrow Transplant Research (CIBMTR)

CIBMTR collaborates with the global scientific community to advance hematopoietic cell transplantation and cellular therapy research worldwide. A combined research program of the National Marrow Donor Program® and the Medical College of Wisconsin, CIBMTR facilitates critical research that has led to increased survival and an enriched quality of life for thousands of patients. Our prospective and observational research is accomplished through scientific and statistical expertise, a large network of transplant centers and a clinical database of more than 300,000 transplant recipients.

CordBloodForum.org

The mission of cordbloodforum.org is to serve patients by disseminating information about the availability and effectiveness of cord blood transpalnts for children and adults, and to facilitate communication among transplant physicians, transplant coordinators, cord blood bank personnel, and patients.

Decision: Donation

301-443-7577
Decision: Donation - A School Program That Gives the Gift of Life was created in response to the U.S. Department of Health and Human Services' former Secretary, Tommy G. Thompson's, vision of a model instructional package for high schools that will educate the nation's youth about the importance of organ and tissue donation and the need to make an informed decision about whether to be a donor and share their donation wishes with their families.

DKMS

The DKMS mission is to save lives by recruiting bone marrow donors for leukemia patients. More than 20,000 DKMS donors have helped save lives by donating their bone marrow. DKMS is the largest bone marrow donor center in the world with over 2 million registered donors. However, there are still thousands of patients who cannot find their donor match. DKMS will continue to recruit bone marrow donors until every patient gets a second chance at life.

Donate Life America

804-782-4920
Donate Life America, formerly the Coalition on Donation, was founded by the transplant community in 1992 to educate the public about organ, eye and tissue donation and avoid duplication of effort.

Family House (Pittsburgh, PA)

412-647-7777
Family House provides a special "home away from home" for patients and families who are in Pittsburgh for treatment of serious or life-threatening illnesses.

Gift of a Lifetime

A guide to understanding organ donation.

Gift of Life Donor Program

215-557-8090
The non-profit agency serving the eastern half of Pennsylvania, southern New Jersey and Delaware, is responsible for recovering and distributing organs and tissues used in life-saving and life-enhancing transplants.

Gift of Life Transplant House (MN)

507-288-7470
A relocation resource for transplant patients of Mayo Clinic in Rochester, Minnesota.

Imerman Angels

Imerman Angels is a federally registered 501(c )(3) not-for-profit organization providing one-on-one cancer support: connecting cancer fighters, survivors and caregivers. Imerman Angels partners a person fighting cancer with someone who has beaten the same type of cancer. One-on-one relationships give a fighter the chance to ask personal questions and get support from someone who is uniquely familiar with their experience. The service is absolutely free and helps anyone touched by any type of cancer, at any cancer stage level, at any age, living anywhere in the world.

Inspire

Inspire connects patients, families, friends, caregivers and health professionals for health and wellness support. Inspire works with trusted health partners to build safe and secure health and wellness groups.

International Institute for the Advancement of Medicine (IIAM)

570-496-3400
IIAM works with organ procurement organizations, tissue banks, hospitals, hospice programs, funeral directors, medical examiners, and individual donors throughout the United States in offering donation of organs and tissues for research and education.

International Pediatric Transplant Association (IPTA)

856-439-0500
IPTA is dedicated to promoting technical and scientific advances in pediatric transplantation and to advocating for the rights of all children who need transplantation.

International Society for Heart and Lung Transplantation (ISHLT)

972-490-9495
ISHLT is a multidisciplinary, professional organization dedicated to improving the care of patients with advanced heart or lung disease through transplantation, mechanical support and innovative therapies via research, education and advocacy.

International Society for Organ Preservation (ISOP)

213-229-5600
ISOP works to advance the science and technique of organ preservation for transplantation and disseminate knowledge related to the fields of organ preservation and transplantation.

James Redford Institute for Transplant Awareness (JRI)

310-559-6325
JRI is a nonprofit organization dedicated to educating the public about the need for organ and tissue donation. Its goal is to raise awareness of this issue through film, educational outreach, and on the web.

LifeLink Foundation

813-253-2640
LifeLink Foundation is a non-profit community service organization dedicated to the recovery of life-saving and life-enhancing organs and tissue for transplantation therapy. The Foundation facilitates the donation of needed organs and tissues, support research, improve clinical outcomes of patients post transplantation and works closely with the United Network For Organ Sharing (UNOS).

MatchingDonors.com

781-821-2204
MatchingDonors.com is a venue where patients and potential donors can meet and communicate, and hopefully expedite a donor agreeing to give a patient a much-needed organ.

NATCO: The Organization for Transplant Professionals

913-895-4612

National Bone Marrow Transplant Link (nbmtLINK)

1-800-546-5268
The mission of nbmtLINK is to help patients, caregivers, and families cope with the social and emotional challenges of bone marrow/stem cell transplant from diagnosis through survivorship by providing vital information and personalized support services.

National Heart, Lung and Blood Institute (NHLBI)

301-592-8573
The NHLBI is an organization dedicated to research of the diseases of the heart, lung, and blood. It provides patients with a website full of information related to that research and current treatment options.

National Kidney Foundation

1-800-622-9010
The National Kidney Foundation, Inc (NKF)., is the major voluntary health organization dedicated to preventing kidney disease, improving the health and well-being of individuals and families affected by kidney disease and increasing the availability of all organs for transplantation. The NKF achieves life-saving results today through the contributions of a generous public including participation in NKF signature initiatives such as the Kidney Cars Vehicle Donation program, Kidney Walks and the NKF Golf Classic.

National Kidney Registry

The mission of the National Kidney Registry is to save and improve the lives of people facing kidney failure by increasing the quality, speed, and number of living donor transplants in the world.

National Living Donor Assistance Center

703-414-1600
The organization provides financial assistance to those who want to donate an organ, priority is given to individuals not otherwise able to afford the travel and subsistence expenses associated with living organ donation.

National Marrow Donor Program - Be the Match

1-800-627-7692
The NMDP manages the world’s largest registry of marrow donors, organizing the recruitment, search, and matching process.

National Minority Organ Tissue Transplant Education Program (MOTTEP)

1-800-393-2839
National MOTTEP works to decrease the number and rate of ethnic minority Americans needing organ and tissue transplants. MOTTEP will achieve its mission by implementing a national information and education campaign that emphasizes both prevention and intervention strategies.

Nicholas Green Foundation

818-952-2095
The Nicholas Green Foundation, set up by the Green family, is a non-profit organization dedicated to furthering the cause of organ and tissue donation around the world. It does this by spreading information to increase awareness of the shortage of donors everywhere. It can also support a broad range of children's causes. It produces videos and helps organize special events.

Nielsen Organ Transplant Foundation (FL)

904-244-9823
The NOTF works to improve the quality of life for organ transplant patients in Northeast Florida. Its programs include financial assistance, donor awareness, mentoring, information and resources.

Organ Procurement and Transplantation Network (OPTN)

1-888-894-6361
The Organ Procurement and Transplantation Network (OPTN) is the unified transplant network established by the United States Congress under the National Organ Transplant Act (NOTA) of 1984.

OrganDonor.Gov

The official U.S. Government web site for organ and tissue donation and transplantation, www.organdonor.gov, is maintained by the Health Resources and Services Administration (HRSA), Healthcare Systems Bureau (HSB), Division of Transplantation, an agency of the U.S. Department of Health and Human Services.

Paired Donation Network

800-532-0642
This website is for patients and transplant professionals who wish to learn more about Paired Donation. The website is designed for individuals who have little or no medical knowledge and also for individuals who work in kidney transplant programs who want to be able to offer Paired Donation to their patients.

Scientific Registry of Transplant Recipients

1-800-830-9664
The Scientific Registry of Transplant Recipients is an ever-expanding national database of transplantation statistics. Founded in 1987, the registry exists to support the ongoing evaluation of the scientific and clinical status of solid organ transplantation, including kidney, heart, liver, lung, intestine, and pancreas.

Seattle Cancer Care Alliance

800-804-8824

Second Wind Lung Transplant Association, Inc.

1-888-855-9463
The organization works to improve the quality of life for lung transplant recipients, lung surgery candidates, people with related pulmonary concerns and their families, by providing support, love, advocacy, education, information and guidance through a spirit of service, adding years to their lives and life to their years.

The Mason House (GA)

404-712-5110
The Mason House is a private retreat that offers low cost housing for organ transplant candidates, recipients, living donors, and families.

TIGER Transplant Fund

The TIGER Fund coordinates medical data on organ transplantation, organ donor information, white papers about transplantation, liver disease, liver health, and family support programs for transplant families, and caregivers. It also offer a number of ways to help the transplant community with direct aid, grants and gifts.

Transplant Buddies

Established in 1999, the TransplantBuddies site provides information about the transplant process, resources covering drugs and side effects, and daily discussions about living life as a transplant patient. The site also includes members Photos, Life stories while covering experiences of both transplant recipients and donors.

Transplant Connections

Database of transplant resources.

Transplant Experience

1-800-510-6990
Transplant Experience is a site dedicated to helping kidney, liver, and heart transplant patients.

Transplant Experience Journal

The Transplant Experience Journal is a collection of stories, pictures, and personal experiences from families about what it has been like to have a liver, kidney, heart, or lung transplant. It represents the "collective wisdom" of these families as well as their health care providers.

Transplant Foundation, Inc.

305-817-5645
Transplant Foundation focuses on providing both financial and emotional support to transplant patients.

Transplant Living

1-888-894-6361
Transplant Living is a website full of information, resources, and news about transplantation. The site can also be personalized for the patient’s specific needs.

Transplant News

1-800-521-4323
Transplant News is the only independent e-weekly and monthly newsletter providing up-to-the-minute information on developments in organ, tissue, eye, cell and bone marrow procurement and transplantation. Transplant Communications, Inc., was formed in 1995. In addition to the newsletter, Transplant Communications publishes the International Transplant Directory, now in its 11th printing.

Transplant Recipients International Organization, Inc. (TRIO)

1-800-874-6386
TRIO is an independent, not-for-profit, international organization committed to improving the quality of life of transplant candidates, recipients, their families and the families of organ and tissue donors.

Transplant Speakers International, Inc.

1-877-609-4615
The organization works to improve or save lives through public education given via a donor-recipient perspective.

Transplants for Children (TFC)

210-949-1212
TFC is dedicated to assisting young organ and tissue transplant recipients and their families in effectively coping with the emotional, financial, and social challenges that arise before, during and after transplantation.

TransWeb

734-764-4141
TransWeb features real people's experiences, the top 10 myths about donation, a donation quiz, frequently asked questions with answers, as well as educational reference and videos of U.S. and World Transplant Games. For adults and teens, TransWeb features Give Life: The Transplant Journey a multimedia trip through the donation and transplantation process.

United Network for Organ Sharing (UNOS)

1-888-894-6361
The UNOS mission is to advance organ availability and transplantation by uniting and supporting our communities for the benefit of patients through education, technology and policy development.

Air Care Alliance

1-888-260-9707
The Air Care Alliance is a nationwide league of humanitarian flying organizations whose volunteer pilot members are dedicated to community service.

Air Charity Network

1-877-858-7788
Air Charity Network™ (ACN) provides access for people in need seeking free air transportation to specialized health care facilities or distant destinations due to family, community or national crisis.

Air Compassion America (ACAM)

1-866-270-9198
ACAM’s mission is to help patients and families undergoing a difficult health crisis by offering them counseling and working to lower air ambulance and medically assisted travel costs.

Air Compassion for Veterans

1-888-662-6794
This organization works to ensure that no financially-stressed wounded warrior/veteran/active duty military person or their family member(s) is denied access to distant specialized medical evaluation, diagnosis, treatment, or rehabilitation for lack of a means of long-distance medical air transportation.

CAIR Flight, Inc.

813-864-4860

Commission on Accrediattion of Medical Transport Systems (CAMTS)

864-287-4177
CAMTS is a peer review organization dedicated to improving patient care and transport safety by providing a dynamic accreditation process through the development of standards, education, and services that support our vision.

Corporate Angel Network

866-328-1313

Grace Flight of America

888-500-0433

Homeland Security Emergency Air Transport System (HSEATS)

1-888-581-3752
HSEATS is the United States civil aviation response to disasters. It is a jointly coordinated program that utilizes aircraft owned and flown by volunteer pilots, corporate business jets, air ambulance services through Air Compassion America and donated airline tickets through Mercy Medical Airlift.

Med Flight Air Ambulance

1-800-842-4431
Med Flight provides both critical care emergency transport and non-emergency medical transport to those in need, 24 hours a day, 7 days a week.

MedFlight

1-800-222-5433
MedFlight is a non-profit, air and ground critical care transportation company based in Columbus, Ohio that completes nearly 7,000 critical care transports by helicopter and mobile intensive care unit each year.

Mercy Flight Central

A non-profit organization of air medical professionals, devoted to integrity and compassion, providing critical care to the sick and injured.

Mercy Medical Airlift

1-800-296-1217
This resource provides information for obtaining affordable emergency medical transportation.

Miracle Flights For Kids

800-359-1711
Founded in 1985, Miracle Flights for Kids® is a national, 501(c)(3), nonprofit organization dedicated to helping low income very sick children overcome financial obstacles that prevent them from accessing proper medical care and second opinions. Miracle Flights for Kids flies children who are struggling with serious cancers and debilitating diseases to specialized medical treatment centers across the U.S. Any child needing medical treatment or seeking out a second opinion not available in their own home town is eligible to apply for a miracle mission.

National Patient Travel Center

1-800-296-1217
The NPTC exists to facilitate patient access to appropriate charitable medical air transportation resources in the United States.

Operation Liftoff

314-298-9770
Their mission is "to provide hope for courageous and frightened children with air transportation for a treatment trip. It is our goal to gain the resources necessary to provide air transportation for children with a life threatening illness."

Pilots for Christ International, Inc.

703-791-0448

Veterans Airlift Command

952-582-2911

AirLift Hope

1-800-325-8908
Serving Arkansas, Louisiana, North Carolina, and Tennessee.

Ambulimo

215-744-4544
Serving the Greater Philadelphia Region, Ambulimo was created to provide comfort and hope to those undergoing constant medical treatment. Certified EMT chauffeurs, top of the line ambulance equipment, custom-built gel mattresses, soothing music, and a flower to end each trip, are just some of the many features that make Ambulimo unique.

Angel Flight

1-877-426-2643
Serving Georgia, Alabama, Mississippi, Tennessee, North Carolina, and South Carolina.

Angel Flight East

1-800-383-9464 Serves 22 states on the east coast.

Angel Flight Mid-Atlantic

1-800-296-3797
Serving the District of Columbia, Delaware, Kentucky, Maryland, Michigan, Ohio, Pennsylvania (Flights departing PA going generally east or north are handled by Angel Flight Northeast. Flights going generally south or west from PA are handled by Angel Flight Mid-Atlantic), Virginia and West Virginia.

Angel Flight Northeast

978-794-6868
Serving Connecticut, Maine, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, and Vermont.

Angel Flight South Central

1-800-989-2602
Serving Texas, Oklahoma, Louisiana, Arkansas and New Mexico.

Angel Flight Southeast

1-800-352-4256
Serving Florida.

Angel Flight West

1-888-426-2643
Serving Alaska, Arizona, California, Colorado, Hawaii, Idaho, Montana, New Mexico, Nevada, Oregon, Washington, Wyoming, and Utah.

Boston MedFlight

1-800-233-8998
Serving Massachusetts.

CALSTAR

916-921-4000
Serving Northern California.

Children’s Flight of Hope, Inc.

919-466-8593
Serving North Carolina and surrounding states.

Flights For Life, Inc.

Serving Arizona and surrounding states.

GivingFlite, Inc.

205-908-9464
Serving Alabama.

His Wings Aviation Ministries

570971-4074
Serving Pennsylvania.

Hope Flight Foundation, Inc.

510-427-3956
Serving California, Nevada, and Oregon.

Houston Ground Angels and Pilots

281-900-7377
Serving Texas.

Kids Wings

810-599-8765
Serving Michigan.

LifeLine Pilots

1-800-822-7972
Serving the Midwest.

MedFlight of Indiana, Inc.

317-291-1400
Serving Indiana.

Mercy Flight Southeast

1-888-744-8263
Serving Florida, Georgia, Alabama, South Carolina, and Mississippi.

Midwest Medflight

1-800-922-3050
Serving Michigan.

Northwoods Airlifeline

1-800-311-1760
Serving Michigan and Wisconsin.

Patient AirLift Services

888-818-1231
Serving the Northeast, Patient AirLift Services arranges free air transportation based on need to individuals requiring medical care and for other humanitarian purposes.

Wings of Mercy

1-888-786-3729
Serving Michigan, Ohio, Indiana, Illinois, and Wisconsin.

Wings of Mercy, Minneseota Inc.

1-800-986-3729
Serving Iowa, Minnesota, North Dakota, South Dakota, and Wisconsin.

Resource of the Week

Patient AirLift Services
Serving the Northeast, Patient AirLift Services arranges free air transportation based on need to individuals requiring medical care and for other humanitarian purposes.